Sheila Schoonmaker

April 5, 2008

High, low…who’s to know?

Just what the world needs, more loose terminology that’s subjective and inflicts subtle bias. If it’s not complicated enough with “high-functioning autism” and “low-functioning autism,” then there is the controversy of Asperger’s being a form of autism verses it not being one. Personally, I’m still divided on this part. I lean more towards believing that Asperger’s Syndrome is not a form of autism, but maybe that will change as I learn more.

Meanwhile, I’m stuck having to work with terms I don’t feel comfortable with. Until a better vocabulary structure can get established for describing autism (if it’s even possible to change thanks to how stubborn people can be, myself included), I will temporarily compromise. Hopefully others will come up with ideas on developing a proper language to replace what’s misleading people now.

Labels like ‘high-functioning and low-functioning’ have their place and purpose, but the problem is that unless a person is at the receiving end of the label, most likely s/he will be unaware of what impact it has. What happens to one person, actually affects everyone sooner or later. The whole human race is in the same boat, so when people are careless about others and don’t think about them much, then the result is chaos. It’s a dilemma because humans by nature are self-centered. That’s why this world will always have war and disease.

Back to the functionality of people . . .

Who gets to decide what level another person is placed upon in regards to fitting into this world? Can’t people see that to measure another person’s functionality is basically judging their value? How many people would not mind being referred to as being ‘low’ functioning, ‘retarded/slow learner,’ or as being a ’special needs’ person? How demeaning!

People should appreciate those who don’t conform very easily. It’s the non-conformists who provide the best displays of the Pygmalion Effect (self-fulfilling prophecy). Everyone basically lives up to what they believe about themselves, but it’s those who ’swim against the tide’ that can teach the most. They can because they’re usually the ones who don’t buy what others are selling too easily. I used to live my life totally brainwashed because of what other people had me believing about myself. I was told I’m too stupid to go to college by my high school guidance counselor. I could go on from there, but won’t. My point is that if a child believes he is ‘low’ functioning and the world reinforces that, then unless a miracle comes along to convince him otherwise, he will live that self-fulfilling prophecy out in his life. That’s the consequence everyone will then have to suffer just because some people were thoughtless, ignorant, judgmental, and probably arrogant too.

Along the same lines of misjudging, I (and some others) see what problems tests cause. Testing is okay for the most part, but they also can do a lot of damage. There are so many adults that have grown up convinced they’re less intelligent than what they are because of tests. Tests are a two-way street. Often times the creators of tests are the ones who are deficient in intellect. When that’s the case, then the ones who are made to take ‘their’ tests end up being judged wrongly and then are duped into believing what’s not true because they’re not allowed to question the questioner!

Oh yeah . . . that reminds me of something else twisted around about Asperger people. People complain because Aspies question authority. Duh . . . well what if someone sees something wrong? They’re supposed to keep quiet so they don’t cause humiliation? Forget that! I’ve had my fill of keeping quiet. If I see something wrong with the picture, I’m going to try to straighten it out on the wall. Otherwise, everyone will keep looking at a crooked image. Is it wrong to have a nature that gets disturbed over things out of alignment?

We need more of a variety of words to describe the different ways that different can mean. Either I’m too tired to think of them or maybe they don’t exist in the English language. Whatever the case may be, it’s time to re-think the impact a word can have. After all, “the pen is mightier than the sword,” right?

Real Medical Issues

Can people believe it’s actually possible for someone to forget that real medical issues occur? All I can do is tell others that I am one of them who does. Because I forget this, it tends to cause me to mislead others by what I write. I feel terrible knowing that I’m offending people unnecessarily because of not realizing what other people are thinking when they’re trying to figure out what I’m saying. It just goes to show how helpful feedback can be and it’s also a reminder of how much time and work explaining can take.

I fully agree that many children have real medical issues. Children on the autism spectrum do have comorbidities that need attention and care. I have had my share of them. As a young child, I went through a set of health-related issues. As a young adult in my early 20’s, another stage of physical ills passed my way. Upon entering my middle-aged years, I struggled through about 13-14 years of chronic insomnia. My most recent ‘bump in the road’ of physical health was from an episode of a frozen shoulder. Aside from now experiencing a cold about 2 or 3 times per decade, and (at the most) mildly being ‘caught’ by a flue bug about 15 years ago, the only other thing that ‘caught me’ was lyme disease. My several exposures to lyme however never led to the lyme borreliosis bacteria getting much of a chance to mess up my immune system.

I used to have a weaker immune system, but now it’s pretty darn tough. It has to be because it’s the only form of health insurance I’ve got and it’s the only insurance I trust, can afford, and want. Because of how pleased I am with how well my body takes care of me, I tend to get very excited about how wonderful the human body is capable of taking care of itself if its needs are met. True medicine should be a matter of knowing one’s own self very well, along with understanding how everything in life is harmoniously balanced. Handling symptoms definitely has its place, but learning the ‘whys’ is a whole lot better. Once all that information gets plugged into place, then there is wholesomeness in operation. All is at ease instead of being dis-eased. To me, dis-ease is simply having some factors stressing against one another instead of working in co-operation (unity and harmony). I have a radically different approach to health than most people do, so I apologize if and/or when I may be upsetting others because of that.

I do not look down my nose at all towards people who handle health-related issues in conventional ways. What does jerk my chain though is when people mix things that are not health issues in with things that are! Everybody has body parts that function the same way, but there is one body part that even though it does the same job for everyone, it does that job in different ways for different people. That part I’m referring to is called, “the brain.” I can see why people ignorantly call Asperger’s a disorder and how come some people even go so far as to say it’s a disease. However, just because someone can’t comprehend why something functions differently does not give him the right to label it as being something which needs a cure!

Doctors can master such things as how a stomach, liver, kidney, ear, heart, etc. work much easier than they are going to figure out how the brain works. The brain is a whole different form of matter because there are other factors involved that I doubt will ever get covered by medical science. In fact, it might be safe to say it’s impossible to even talk about those factors. I hope no one asks me what I’m talking about here, because I don’t even want to begin to explain. It’s way beyond explaining. I just accept it and I actually accept how other people handle their health issues differently.

I’m so adamant about protecting my way of living that I probably end up having people feel bad about their way. Maybe it helps to know that what I’m saying here in this post is an example of how frustration is unavoidable when wanting to help with solving complex puzzles because it takes the whole package to answer. Besides some packages being difficult to comprehend, some parts in that package will also be tough adjusting to. When I say package, I’m referring to individual people — in this case, I mean me.

Who else goes through this?

Whenever I get used to a program’s visual set-up and then it gets changed in appearance, it’s like someone has climbed inside my head and re-wired my brain so that I have to re-learn how to think in order to use the same thing! I don’t mean to complain about WordPress since it’s a great online blog program, but I doubt they know what effect it can have on Aspergians like me.

I wonder how many other people go through this mental frustration?! Others who use WordPress will know what I’m talking about, but people who are just reading my blog might not know because what they see at their end looks unaltered. For those who don’t know what it looks like ‘behind the curtain’ here, WordPress made some radical re-arranging.

I’m still a ‘newbie’ here, so I’m hoping WordPress doesn’t make alterations too often. I don’t know why they even did do it. Everything worked fine before. In fact, for me, the design set-up was better before this last overhaul. Now I’m so distracted because of having to get used to using what’s different!

My point? Urgggh! I absolutely HATE having to make mental re-adjustments when I’m in the middle of concentrating on more important things!!!! It’s just like having a personal library with thousands of books you’ve carefully placed in a certain order so you can find a book you know you have somewhere. Then along comes a ‘house cleaner’ who rearranges all your books for you while you’re gone. You come back to find a book only to discover you’ve got to re-learn a new order.

I guess I just got a good reminder of what bothers me a lot. Oh well, now I DO have more writing material to explain some more characteristics about the Aspie world.

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