Sheila Schoonmaker

May 30, 2008

Mainstreaming

It’s amazing how almost all people, who mainstream their children, think they know what’s best for ALL children. I hear comments like, “My child did well in public school and she survived even though she had a learning disability,” but yet saying it without realizing the differences which exist in regards to learning disabilities.

I was recently told about a girl who struggled with learning to read and write. Her father was trying to use his daughter as an example to show that Asperger children do better if they are mainstreamed with their education and that homeschooling can’t equip them for the world as well as being in a large school system. He mistakenly thinks Asperger’s syndrome is merely a learning disability that mainstream schools can accommodate. I wish I was quick enough to plug in the question, “Since when do scholarly studies have anything to do with socializing issues?”

Another thing that’s warped is the term learning disabled. It’s a classic “it depends” case. Using the logic most people do in regards to this term, I could say my bright neurotypical daughter is learning disabled if I taught her the same way I taught my neuro-A-typical son. When it comes to educating neurologically different children, they cannot learn in the same environment using the same methods!

Putting autism spectrum children into a special needs classroom is NOT enough and may even be more harmful than good, because they already have a strong awareness of being unacceptable due to being socially and cognitively different. Special needs classrooms are still in the mainstream environment. Those classrooms will not only never be built differently enough, they can never become customized for each Aspie student’s needs. Most Aspies don’t learn best by such traditional methods as using a teacher talking, writing notes on the board, and having all her students staying seated to focus on her.

Most people really believe that if a child with Aspergers is homeschooled, or attends a school specifically structured for those on the autism spectrum, that s/he will be at a disadvantage because they think s/he will become spoiled. Okay then, how about if I throw some tropical fish into a tank that goldfish thrive fine in? Is having a special aquarium set up for tropical fish “spoiling” them if there are many more goldfish than tropical fish?

Only those who have raised their children in an unconventional way have the ability to speak knowledgeably on the topic of whether or not mainstreaming is good for a child.

There are Aspie students who ’survive’ mainstreaming (I’m one of them), BUT they would have received a superior education if they were not mainstreamed AND without such risks as constantly being bullied, receiving permanent bad behavior records, and (even worse) struggling with suicidal tendencies! Just like children have different dietary needs for optimum health, they also have different social and cognitive needs for mental health. Feed a food to a child that he’s allergic to and he will have a reaction. Force a child into the wrong schooling environment and expect trouble.

It’s too bad that there is no way to prove that providing for an individual child’s needs, even if it means not mainstreaming, results in an adult with greater assets to give back to society. Oops . . . oh yea, there is. But the problem is most people don’t want to hear it. There are more and more homeschool graduates setting that record straight.

If only non-homeschoolers attended events organized homeschoolers do, such as having a theme park day specifically reserved to only allow homeschooling families to attend. You’d think you left earth and were on another planet, because of the massive amount of polite and intelligent behavior displayed by so many children of all ages in a concentrated area.

Don’t be so quick to blame children and/or their parents when it comes to disruptions in mainstreamer’s routines. Most likely, the problem is IGNORANT people in society who have too much influence over the way other people will think!

Just like an Asperger child can be a disruption to a classroom filled with neurotypical children, it’s equally so that a neurotypical child can be a disruption to a classroom filled with Aspie children! In fact, NT kids behave a lot worse (generally speaking). Can you remember when you’ve last heard about a gang of Asperger children gathering to bully and/or beat up a NT child?

May 29, 2008

Bean ‘n Portillo

Mr. Bean and Mrs. Portillo

Mr. Bean and Mrs. Portillo

This is not a ‘hate’ joke. I had to find some way to cope with this news and humor works for me. Maybe it will work for others too?

Hey, if I can survive dumb blonde jokes while living life as an Aspie, then Wendy Portillo should have nothing to wail about with humor like this.

If you don’t get the joke, Mr. Bean is an Asperger’s syndrome character. Judging from info about Rowan Atkinson, it appears he’s also an Aspie off camera too.

Climb Higher

Now that I’ve spoke with the associate editor Anthony Westbury from TCPalm on the phone today (after I wrote my last post) about the way he wrote his May 29th article, I have a better understanding of where he is coming from as to why he chose the words ‘witch hunt.’ He doesn’t apologize for using those words, but thankfully he does realize that America has some seriously major problems with its public school system.

Here’s the bad news:

Mr. Westbury is not aware of the hatred which exists towards those of us on the autism spectrum. He said he has not heard anything about it. His exposure to such comments (not to be confused with the responses) as what lastcrazyhorn lists in her post The Golden Rule is just about null.

I have come across many hateful comments towards people on the autism spectrum, but I didn’t save them since they were too upsetting. Besides the hateful ones, many others were loaded with ignorance, lacked compassion, and contained a lot of judging. One site I happened to recall has 181 comments at my last check. That one (Digg.com) has a mixture of positive and negative remarks, but enough is there (if one wants to take the time to look) for people to see how diverse perceptions are on this matter of Aspergers.

Back to Westbury and what seems to be the biggest problem . . .

Mr. Westbury suspects that Wendy Portillo probably had no alternative way of getting Alex Barton out of the classroom than to do what she did. It’s beginning to sound like Alex has been treated like a hot potato no one wants. It’s as if it’s the, “You take him! No, you take him! Okay, I’ve had him . . . now you take him!” syndrome.

This ladder I’m referring to is bureaucracy. We’re now reaping what’s been sown. Society has progressively been building a bigger government with more agencies and employees way beyond what’s needed! It’s like a computer overloaded with programs running in the background without enough RAM to handle the mess, on top of each program writing code which wants to take priority — you keep doing that to a computer and you end up with your system freezing up because of overload.

Folks . . . we’ve already got OVERLOAD, so I pray to God people realize that the answer is NOT to create more laws and/or hire more employees to ‘enforce(?)’ them. Laws don’t work when there is no accountability. Government schools are not accountable when they get to hide what they want and reveal only what they’d like.

I told Mr. Westbury that if Mrs. Portillo gets to keep her teaching certificate, it would make problems worse. Allowing Wendy to continue working with children gives the message that people can do what they want when they work for the government. Too many government employees already believe they are above the law. On top of that, what’s worse is that children would grow up more cruel than how they already are doing!

I also expressed my opinion by saying that people who choose to work for the government must expect they will be placed into situations where their integrity will be tested. Because people place more importance on having a ‘good’ job that’s ’secure’ than they do on living responsibly towards ALL children, there are going to be children who will get sacrificed on the alter to burn at the stake.

It seems to me that the witch hunt already occured. It was when Wendy Portillo brought Alex Barton to the front of the class and encouraged his classmates to throw fuel into the fire Wendy kindled.

Maybe the change that’s needed is to shift from contacting people in government office to let them know what voters want, and instead place more attention on contacting those who influence public opinion the most (people who work in the news media).

Start with contacting people like Anthony Westbury to educate him on how much intolerance exists towards those on the autism spectrum. I’m not sure he was paying much attention to such things as my telling him that autistics are usually not allowed to voice their opinion on national television unless they give the impression they’d like autism ‘cured’ and that financially powerful organizations like Autism Speaks do not let autistics speak.

“If the horse isn’t thirsty enough to look for the water, then bring the water to the horse.” (My words)

Unprofessional is unacceptable!

I wonder how others on the autism spectrum, who have lived through a lifetime of emotional abuse, can handle paying attention to the news about Alex Barton and Wendy Portillo. I get my news off the internet, since I cannot stand the slant television and newspapers persistently strive after.

What a rock and hard place to be stuck between! → It’s encouraging to see hope for change in regards to possible tolerance towards neurodiversity, but then on the other hand, it’s beyond disgusting to be reminded of how much hatred and willful ignorance exists towards Asperger’s syndrome people!

Today’s updated news from TCPalm.com is beginning to show a direction to steer the public off course (as this type of reporting typically does). Associate editor Anthony Westbury seems to be desperately hoping to gather as much information as he can to take the side of intolerant neurotypicals. Why do I say that? It’s because of what he doesn’t point out (plus, the words ‘witch hunt’ were used to make those of us who want Portillo removed to seem like we’re the horrible ones stuck back at in unpopular time of history)!

There is a FACT about this case which should be brought to attention above all else and it does not require any information about Wendy Portillo’s teaching record:

Mrs. Portillo did NOT handle the situation of Alex’s behavior in a proper professional manner!

I heard on a news video that Wendy was teaching about tallies when she decided to have Alex brought to the front of the class for this vote to have him removed. Plus, she said Alex was disgusting and annoying (she would have been less vulgar if she called his behavior that, but no . . . she chose to reference that to Alex instead)! If people will not magnify (and most probably will not) this aspect of the story (and the fact that Wendy KNEW about Alex’s ongoing diagnosis for Asperger’s syndrome), then I’m afraid those who are fighting for the rights of us on the autism spectrum to receive equal respect as human beings are going to have to get a lot more active!

Yesterday, I placed two links (in a post and on the side column) for signing a petition against Mrs. Portillo’s emotional abuse. Since they were to the same petition and that petition isn’t as well known, I shall leave the one in the post as is and change the one on the side to the more popular petition. Numbers speak best, so if you want to add your name to the petition with the greater number, sign this petition at thepetitionsite.com to fire this teacher for unprofessional conduct.

Professional conduct demands that a teacher, who is in a situation of wanting to remove an Asperger student from her classroom, should do so PRIVATELY so as to minimize the humiliation that a boy like Alex already has to endure! It does NOT matter what Portillo’s teaching record was like, because now her record should state she broke her agreement to teach in a professional manner.

May 28, 2008

Accountability

Christians are already accountable to God for their attitudes and actions, but what about the unsaved? As usual, God is reminding me to forgive others as He has done for me. This does not mean ignoring bad behavior like what Wendy Portillo did to Alex Barton. To love thy neighbor does not mean allowing others to have their way with whomever they like, but it does mean to execute justice¹ with a humble spirit.

I have no authority to enforce the law upon wrongdoers, but I do have the authority to pray that the Lord would have mercy upon the unsaved and would set them free from their captivity of Satan’s rule. I’m not saying I know that people like Mrs. Portillo cannot already be a saved person. Only God knows a person’s heart. Because it’s possible (and most likely probable) Wendy could be a lost soul who does not know the love of God, to not have a supporting spirit of prayer (but rather an attitude of condemnation) would be as much of a crime (in the eyes of God) as what was inflicted upon 5 yr. old Barton. Both actions stem from the lust of pride.

I also have the authority to help direct others in knowing how they too can assist in making a person accountable for their actions. My main reason for this post is to include a couple of links where others can sign a petition to make Wendy Portillo accountable of emotional abuse. The one here is the same one as in my right column (under ‘Support Neurodiversity’).

Emotions . . . they can be a blessing or a curse. Without humility, upsets are a curse. Without pride, upsets are a blessing. The same holds true for accountability. If the court systems eliminated all cases brought in by pride (the spirit of vengeance) and only allowed those with the right spirit (therefore but by the grace of God go I, combined with ‘love thy neighbor’ by protecting him or her), then maybe we really would have a judicial system that would no longer be the best that money can buy. Instead, we might actually have a functional society.

[Paragraph below – edited on May 29th]

The article linked to Wendy Portillo in my Asperger Paradox post contains incorrect information. Since it states that this incident occurred on Wednesday, April 21st of this year, that proves it could not have happened then. It must be May 21st. That would fit with the other reports and match the date of the month with the day of the week.

I’m glad it was a mistake, because that means the news reports responded within an acceptable time frame.

¹Justice is as described in Leviticus 24:19-20: “And if a man cause a blemish in his neighbour; as he hath done, so shall it be done to him; Breach for breach, eye for eye, tooth for tooth: as he hath caused a blemish in a man, so shall it be done to him again.”

Since what Mrs. Portillo did to Alex Barton is a permanent blemish on his life, Wendy should also receive an equal blemish to her life. She should have her teacher’s license permanently revoked. If you want to know what fair justice is, ask a matured Aspie. Aspergers people have this trait embedded into their nature. It’s who we are. However, unsaved Aspies can be just as vindictive as unsaved neurotypicals.

May 27, 2008

Assumptions

Assumptions are made often and unconsciously by everyone. Because of being as bothered as I am today over learning about what happened to a kindergarten student with Aspergers (Alex Barton), it will take time for the grace of God to temper my disgust towards people like Wendy Portillo. It also means I must be extra cautious towards hearing and/or reading about injustices like in this example with what happened to Alex (at least for awhile anyhow). What kind of message is Florida’s state attorney’s office giving to society when it concludes that matters like this do not meet the criteria for emotional child abuse, so no criminal charges will be filed?!?!

I assume people do realize that incidences like what happened to this kindergarten student with Aspergers is what can lead to such things like the Columbine High School massacre, but since I was told that there are people who would not be able to make the connection, I should point it out. So, if Colorado’s state attorney’s office thinks and/or behaves like Florida’s office does, then those victims at Columbine’s shootings ought to be paying a lot more attention to those working in the state attorney’s office than to foolish ideas like gun control. That’s akin to thinking you can cure the disease by eliminating the symptoms.

Oops . . . I’m making another assumption! I’m assuming that people know eliminating symptoms does not mean there has been a cure. Many people foolishly think some have been ‘cured’ of autism since they don’t ’see’ the symptoms they used to. Those are probably the same people who think world peace would be possible if only weapons ceased to exist.

Neurotypical people assume everyone should automatically know who (and how to please others of higher rank) is much more important than knowing how to do a job well. To those people, I’d love to ask how logical their thinking is when it comes to trusting your life (or the lives of your loved ones) into the hands of people hired for their social skills over those better equipped for the job.

Yes, when you assume, you make an ass out of you and me. However, what is a person to do when the socially correct thing is to assume other people have as much intelligence as you, but it’s obvious that they don’t? How wise is it to assume people can figure things out for themselves, especially when they consistently show themselves incapable of many things but then justify their irresponsibility by rationalizing ‘everyone does it’?

Asperger Paradox

A paradox from page 157 — Autism from the Inside (Internal View) — from the book Theory of Mind and the Triad of Perspectives on Autism and Asperger Syndrome: A View from the Bridge by Olga Bogdashina:

“…another paradox which is quite common in high-functioning autism: the more successful you are intellectually and academically, the fewer chances you have in employment.”¹

How many people know this? Maybe more would if they also read what follows these words:

“They often face two main problems: to get a job, and (if they get it) to keep it. When they look for a job, they (justifiably?) assess their abilities in accordance with the necessary skills they have to have to do this particular job properly. In practice, however, most jobs have a written job description, which specifies what the successful applicant will do, and also an unwritten job description, which specifies who the successful applicant has to please, and in what order of importance.”

There is no need for me to repeat the priority of who to please over knowing how to do the job. I always had a sense that this hidden description existed, but because society places so much importance on education and experience, it also seemed that there had to be a certain level at which the knowing how to do the job could overpower knowing who to please.

Such things are brought back to remembrance thanks to actions like Wendy Portillo, a kindergarten teacher in Port St. Lucie,Alex Barton.

Mrs. Portillo made it abundantly clear that knowing who to please is far more important than receiving a good education. God only knows what Wendy did to please those who made the decision to hire her for a teaching position. It’s obvious she wasn’t hired because of knowing how to be a good teacher.

Getting back to this Asperger paradox between education and employment, I now see I’ve probably totally blown away any last remnant of a chance I had for employment because of being that type of ‘permanent student’ Ms. Bogdashina talks about people on the autism spectrum being due to thriving on intellectual stimulation.

It amazes me that after receiving a degree in Business Administration, I now look back and do not recall any mention about unwritten job descriptions specifying the importance of knowing who to please. This seems like a major omission to leave out of a business curriculum, especially at the college level.

It’s no wonder after receiving my worthless degree for Graphic Design from college (thanks to their program not including computers yet, but were added a year or two later), that I froze when it came to me ’selling’ my portfolio. Had I known that I was going to have to impress people more by my persona than my work, I never would have bothered to waste my time getting an education that was already known to become obsolete in the very near future.

By the time I finished pursuing my degree in Psychology, I already could see where a college education was taking me . . . or more like, where it was never going to take me. The educational institutions are no different than any other business — after they get their money, you’re on your own.

I doubt that the St. Lucie County School District (Morningside Elementary School/Alex Barton) is a lot different than most other school districts. I could clearly see from my own personal dealings with the Rondout Valley Central School District in Accord, NY, that their agenda wasn’t really about education either. (If you read about Rondout’s Tribes Agreements, remember to consider the source when it comes to statistics, especially when the source knows they don’t have to prove how they arrived at their numbers.²) Those in charge at Rondout were full of empty promises, deception (they were caught in the act, but that still was not good enough for changes in the right direction to be made), and also psychological child abuse (of course, no state agency will say it meets the criteria to be labeled as such when it’s the state who is doing it).

So, am I saying that the answer then for high-functioning autistics is to strive for being less successful intellectually and academically in order to increase chances for employment? Even though it’s true that neuro-A-typical people with lower education levels are more likely to be employed, that isn’t the direction to take for making improvements. The most notable method for turning the tables on such despicable behavior as to refuse employment for someone who does the job best and/or refusing to educate an intellectually qualified student is to bring a lot of attention to it on the internet.

Because I know I’ve past the point of hope in regards to employment, I can now continue with my education as I have been doing throughout my life, except without having to be concerned over whether or not it will result in employment. It won’t, but one thing is for certain . . . it’s NOT ever going to be because I’m not educated enough. Intelligence and knowledge have their own rewards that money can never come close to matching!

¹It’s not in statistics yet, but I would bet that the odds for employment are even worse for women with Aspergers. At least men are admired for being brilliant, but when women show superior intellectual abilities, they are avoided rather than embraced (unless of course they have ‘good’ connections).

²[This footnote was added on 12-1-8] The Rondout School District published their tribes report. I can’t imagine how a survey could possibly be written more vague than this one! For example, how do you measure school spirit and/or how can teachers know if and/or how much students treat one another with more respect?!?!

May 22, 2008

Kahvi Aika

Filed under: My Faith, My Humor, My Thoughts — Sheila @ 11:55 am
Tags: , , ,

May 21, 2008

Purposeful Boundaries

Even though I’m not writing about Asperger’s syndrome today, the message can easily be applied to both AS and neurotypical syndrome people. My last activity yesterday, before retiring for sleep, happened to be caused by deciding where to relocate a dusty little red book on one of my shelves. I almost always go through such things whenever I’ve acquired a new book. It’s like defragging my hard drive so the Windows operating system can find files faster, since they’re more organized then. Excessive explanation? Not really. It’s to show God can work in strange ways even if they seem trivial.

The little red book (← a pun is there folks!) I’m referring to is titled The Book of Prayers: Compiled for Everyday Worship. It was published in 1981 by Avenel Books in New York and edited by Leon and Elfreda McCauley. Most people would glean through its pages and think it to be dull. Maybe I did too, since I never paid much attention to it during the quarter of a century that it’s been sitting on my shelf.

Anyhow, earlier last evening, I had been brought down in spirits because of being reminded of the harsh realities Aspies face in regards to employment due to how illogical (insane) the work force scene is. It came from the book Theory of Mind and the Triad of Perspectives on Autism and Asperger Syndrome: A View from the Bridge by Olga Bogdashina (more specifically from Temple Grandin’s statements repeated on page 158):

“Many people with autism expect all people to be good. It is a rude awakening to learn that some people are bad and might try to exploit them. AS people often cannot hold down jobs as they are unable (and often unwilling) to ‘play social games’. They are straightforward (not rude). They cannot accept that ‘know-who (to please)’ is more important than ‘know-how (to do the job)’.”

If all people lived to please God, then the work force scene would be logical and sane instead. Oh well, that’s for the new earth — for now, there is still work to be done in this present one. Even though I enjoy most of the work I do,¹ in spite of not getting paid and never receiving encouragement or praise for it, I don’t enjoy being constantly compared to and judged against the lifestyles of ‘normal’ women today.

Enough said about what brought me down; now to what elevated me! Page 28, of the prayer book, contained one called For a Purposeful Life. These are the words which blessed me with the same peace that children acquire from knowing their boundaries given to them from loving parents for their protection:

“When we have found life good, O Lord, we have asked for longer days; when we have found it heavy, we have asked for a lighter load. Teach us to accept whatever comes to us as useful cargo freighted with possible blessing. Help us to wrest a blessing from circumstance, to work with thee in making all things work together for good because we will to live according to thy purpose. Amen.”

Living according to God’s purpose, rather than according to what I want God’s purpose to be for me, is a comfort zone that no prescribed medication can offer. I should know that by now. It must go to show that knowing is not the same thing as humbly abiding in that knowledge.

I don’t know what other blessings lay ahead from the prayers in this book, but I’m eager to find out. The introduction The Strength of Personal Prayer by Harry Emerson Fosdick is loaded with profound statements. I shall summarize this post with a portion from page 4:

“There are two aspects to every strong life—rootage and fruitage, receptivity and activity, relaxation and tension, resting back and working hard. A man who cannot do the former can never do the latter well, never! He who cannot rest, cannot work; he who cannot let go, cannot hold on; he who cannot find footing, cannot go forward. The offices of psychiatrists are littered with folk who have mastered the techniques of activity and aggressiveness and now are going all to pieces because they have failed to master that other technique: they have nothing to rest back upon.”

¹It’s the household engineering duties that can be a drag, but then when I feel that way, I know what’s in need of readjustment (me). Being thankful is the cure for most everything → the greatest is being spared from eternal annihilation!

May 20, 2008

Up, Up, and Away!

I’m unavailable at this time to write more about Asperger’s syndrome traits until my passion shifts back towards AS itself. The euphoria I’m being gratified by from my currently increased dopamine level (due to my other interests besides blogging) is greater than the “high” that my serotonin level can compete with. Of course, there is the option for me to exercise more and increase my endorphin level by doing so. However, if I did that, then I wouldn’t have the drive to learn as much as I am. For now, I like taking advantage of my obsessive/compulsive educational methods.

In my humble opinion, Aspies were created to be passionate over whatever captivates their interest most. After all, if they weren’t . . . who would be?¹ It takes extraordinary fuel to to escape gravity and travel where most others do not normally go.

Neurotypical folks can maintain ’socially acceptable’ patterns of interest due to their naturally higher levels of serotonin. This is why we Aspies get wrongly judged because of our flakiness. It’s also one of the reasons why we get drugs pushed on us to conform. Those who must fit into the mainstream and swim with the other salmon have no choice. As for myself, menopause has retired me from spawning duties. I’m one salmon who is going to make the most of what life I have left and that cannot be done according to someone else’s agenda of what s/he would think is best for me.

Daily mediation on scripture from the bible does boost my serotonin level, so it’s not like there is no source of counter-balance. Heck, if I threw in heavy-duty exercise with my spiritual menu, I might even start behaving more like a normal person in regards to how I divide up my day! Plus, I might get the added bonus of being less skeptical about people, thanks to also increasing my oxytocin level — but, given the way society is going, I’m not so sure I want to be so trusting. Aspies already tend to be too trusting by nature.

¹This is not to say that NTs don’t accomplish exceptional feats. They do. The difference is that Aspies pursue them in unusual ways, most often by the highest standards. Combine the last two ingredients with unconventional thinking, the result can be something unheard of before.

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